Wednesday, February 17, 2010

Looking ahead...


We met with my surgeon Tuesday at MGH and discussed the upcoming procedure... I'll be getting intraoperative radiation on March 3. The tumor is down to about an inch, and will allow them to put a cone onto it that will expose the entire growth to radiation, but spare surrounding tissue. If they don't find any metastasized cancer in other places as they go in, then they will remove my gallbladder and do some other plumbing related work, then zap the tumor directly for 1.5 minutes. The location of the growth in relation to the arteries in my gut make the removal of the tumor impossible, so there is no option for the whipple technique.

I will be in the hospital for about 5 days, then home recovering for another 3-6 weeks.

This procedure has a chance of killing ALL the cancer cells in the tumor, and represents a curative possibility for me. The surgeon told us that there is about a 6% chance of cure for people in my situation who are able to get this procedure. Considering the fact that the growth has been shrinking, we are hoping that any cancer cells floating free in my body have been killed by chemo and all the other work I've been doing, and that this gives me a solid chance to get out of this chapter of my life alive...

One disquieting fact is that this procedure represents the last operative or radiation procedure open to me through conventional medicine. If the cancer persists, my only options would be palliative chemo treatments to give me comfort and extend my days.

It's been almost 9 months since this odyssey began, and all my work has been to get to the next treatment option without having any doors to treatment close. It's a strange feeling to be at a place where my options have become finite, with the outcome still undetermined.

When I was diagnosed, I knew it was unlikely that I would ever get to this procedure, as my prospects were not good. The numbers suggested that I would die by this May or June. I wish I could just jump ahead 12 more months to see if I'm in the clear, but I know that the outcome to this journey may reveal itself in slow time, with my efforts having to continue into an uncertain future. I am pleased and grateful to be at this place, and am really looking forward to getting this done!

I have a week to get my classes prepared for my absence, and if things go well, I will be back to my old life by mid April, with plenty of time to teach, start spring seeds and plant the fruit trees I ordered a few months ago...



29 comments:

  1. Keep your eye on the prize! People can be cured, and my guess is that you will be one of them. Great, great news.

    Bev

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  2. It's going to work. Go get it. Our thoughts are with you Prifti.

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  3. Yes, yes, and yes again! Thinking of you and thanks for bravely keeping us all informed.

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  4. Go for it! Positive thoughts are with you always. You will win--I know it!
    Love, Jody

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  5. I know you're going to be fine... Just keep fighting. Being positive is a cure for many things.

    Love ya,
    Sandy

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  6. If anyone is of the 6% its you Prifti! You continue to be an inspiration, and source of tremendous wisdom. We are looking ahead to MP's 2030- when I may FINALLY get y'all to CA!!
    Mucho love and healing vibes,
    Kym, Maya and Vincent

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  7. You are in my thought and prayers, good things happen to great people.

    John C.

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  8. Dave,

    We are always thinking of you and praying and hoping for good news. Please know that on March 3 we will be sending you all our prayers for a great outcome. WE LOVE YOU!!!

    Mike, Marina, Danielle and Pete

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  9. Prift-
    Thinking of you always, you're strength is an inspiration. Best of luck with everything. I'll be praying for you March 3rd. Love always!
    Shannon Dalton

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  10. Aww Dave, it pains me to read about your tribulations like this. You are way too young to be dealing with this shit, ya know? However, if there is anybody in this world that can meet the challenges set forth, it is you. Mike has been updating Marlene and I periodically and I must say you are an inspiration to us all! Keep up the 'good fight' my friend and know that we are praying for your speedy recovery. I have also forwarded this blog site to Mary Puge so that she may also be aware of your plight... and pray for you as well. I have never known you to back down from a challenge and expect you will face this one head on as best you can. May God grant you the courage to face the most compelling challenge of your life. Be well,my friend, and Godspeed to you!

    Brian

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  11. Dear Dave,

    It has been such a long time, I don't even know if you remember me. Brian sent me the link to this blog and I am so glad he did.
    I am so sorry to hear about all you are going through...but you sound like you have a VERY positive attitude and that is so important when fighting a battle like this.
    I want you to know that you will be in my thoughts and prayers and I will be sending positive energy your way.
    God Bless you....

    Elaine (Guitarini) Heller

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  12. spring seeds! i love to read this. I love to read this. Sending so much good energy to you prifti, need you back at those weeds meetings ASAP

    -Torie B

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  13. Hi Dave,
    I'll be thinking of you on March 3 and visualizing a total annihilation of the bad stuff!!.I can't imagine the pressure of all this waiting. You can do it all if anyone can!
    Can't wait to see your beautiful garden blooming this spring.

    Sending much love, hope for a positive outcome,
    Alice

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  14. Dave, I know you will get through this and this coming year, let's have the biggest birthday celebration ever--and I'm coming to jump out the cake! You are my hero!
    all the love in the world, Korndingo

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  15. sending positive thoughts and meditations across the atlantic.

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  16. I'll imagine infinite Medicine Buddhas surrounding you on Wednesday resonating their mantras down that cone and clearing the way for your renewed health and long, inspired life. So many good, good thoughts coming your way!

    Cherrie

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  17. Dave - thanks for the balance of courage, optimism, and gratitude in your post - you're teaching us folks out in blog land a lot about how to travel on our journeys - warm thoughts for 3/3 - best - jan

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  18. Prifti,
    I'm always trying to send good vibes your way and you are always in my thoughts. Good Luck with the surgery.. will be thinking of you on that day.

    Emily P.

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  19. Hey dearest Dave,
    Whatta great guy you are -- bravest of the brave, eloquent about the incredible journey you're on, deserving of all the best in LIFE. Tom and I send heaps of love and healing spirits, particularly on March 3, surrounding you with healthy vibes. Cease and desist, and OUT, damn tumor!!
    We want you home, well and ready for more chicken tv, spring seeds and fruit trees.
    Hugs all round,
    Sue and Tom

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  20. Hello Dave,

    I posted a comment a few days ago, but true to my computer skills it looks like it's lost in cyberspace. I just wanted to drop a note and wish you continued success towards being one of the 6%. You've posts are remarkably open and insightful, and the positive energy coming from you and your blog family is incredible.....it reminds me of a line from the beatles "across the universe"....limitless undying love that shines around me like a millions suns....

    But I digress...please give Monika and your beautiful children our best wishes and love, and know that you and your family are in our thoughts. Since hearing about your struggle from a friend of Pete's a few days ago I have been unable to take you off my mind, and keep visiting your blog for the positive vibes it gives off.

    Take care for now, and good luck with the operation. I have a feeling things will be just fine. Perhaps we can connect when your up for it?

    Love,

    Alan and Jan Cangemi

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  21. continuing to send love and healing to you Dave, and will esp on march 3rd visualize success!
    you mention the strangeness of coming to the end of conventional medicine, but it is not the end of using unconventional medicine. in 'a course in miracles' it is described that there is no degree of difficulty in miracles and i believe in miracles (since you came along~you sexy thing;hot chocolate)in fact you've already had many! shrinking tumors, great appreciation and joy for your loved ones and each step of success.allowing the love and support around you to touch you- i feel it, its wonderful, even though i have hardly been around you.
    you may enjoy studying 'a course in miracles' while you are recuperating. a shift in perception is what it teaches is at the bottom of miracles. and you have been doing so much work to purify your self. i dont know you well enough to know what you do to dispel fear, but it seems as though you do have your ways- which is key, i believe. keep it up, and keep letting in all those loving and healing vibes surrounding you.
    you are an inspiration!
    xo j&g

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  22. my uncle celestino (star man) would endure the rich texans and made money taking up to the high mtn. country of colorado to kill animals, mostly deer and maybe a bear or two.
    he lived in a train car and used the other for gringoes.
    his wife aunt dora would throw coal into a small stove to keep us warm. she was pretty funny, they had two sons who were pretty bright and good lookn.
    i think they got college degrees.
    one morning this bear was all over this bull, i will always remember it and my older bro. who i do not like yelling for all of us to come see.
    i like the colors of this blog rather tasteful.

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  23. Your humor and positive intelligence remain much in evidence, and you are an inspiration as you navigate this difficult path. Best vibes for the 3rd and a quick and comfortable recuperation! Anne SW

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  24. My son Taro was a 7% chance baby so you can do it!! I will be sending you positive healing energy on 3/3 Denise

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  25. Om Shri Dhanvantri namaha. He's the deity of Yogic medicine.

    David, You'll be in my thoughts on the 3'rd. I love that you share your insights with us all. We'll be sending out healing sounds from 4pm Yoga.

    -john

    http://www.yogawithjohn.com

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  26. Hej Prifti,
    It was so sweet to hang with you and suck on pepparkakor. So glad to hear the update of good news. You are in my thoughts often and will definitely be on March 3rd. Your art openings are such an inspriation to me, even when I can't be at them! Puss o Kram to you all, Hannah H.

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  27. Hi, David,
    You have always been so impressively smart, cool, sweet, and funny. You continue to impress now, with this beautiful and inspirational blog.

    So many people will be thinking of you and your family on March 3, holding you in their love and prayers. God is listening to our healing thoughts! Best wishes!
    Rebecca Butler

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  28. You are a true Profile in Courage

    Susan Erickson

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  29. Dave, the Albanian blood and a bottle of Raki will make everything right. wishing you the best. John

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